A New Perspective On Alzheimer’s
It can be devastating. Someone we love begins to lose their memories. I’ve watched it with two grandparents, and since I spend some amount of time down at the local Health Care Center, I get to be around Alzheimer’s patients quite a bit. I’m pretty used to being mistaken for family, or hearing a story told to me six times over.
But in the midst of this, I’ve found a curious thing. Often, the most frustrated people are the visitors!
What’s Lost?
We usually think of memory as integral to ‘who someone is’. But what if we change our definition a little? After all, we can attach the word ‘grandma’ onto any portion of her existence. For some of us, it’s the body that’s important. For others, it’s the mind. And if we look carefully, we’ll notice that more than anything, ‘grandma’ is made up of our ideas and assumptions about ‘who she is’ and ‘how she acts’. That’s why, when she acts differently, we get upset.
How liberating would it be if we saw grandma Just As She Is? If we decided that what grandma really is is what she Is – right in any given moment. After all, what else can she be in that moment?
Dancing With the Moment
This is liberating because suddenly we don’t need grandma to be anything other than what she’s being.
Take any given conversation with an Alzheimer’s patient. If we decide that they have to make sense, or remember this memory or that, we start correcting them. “No, grandma, I’m Kenton, not Martha. No, grandma, you already ate. No, grandma, I’m not Martha. I just told you that.”
I start getting frustrated. If she’s aware of her inability to remember things, she starts getting frustrated. Soon she’s upset, I’m upset, and all for what? A vain attempt to guide the conversation so that grandma more perfectly resembles my idea of her.
What if I just have a conversation without expectations? Suddenly, it becomes sort of fun. I try to follow her words as she moves, without apparent connection, from one thought to the next. I even get to be Martha! It’s not about being insensitive — quite the opposite. It’s about being sensitive to where her mind is moving, and dancing with her motions. If our attempts at leading the conversation serve only to make everyone frustrated, then why not let her lead?
Letting People Be Themselves
Conversations like this make me look forward to going to the Health Care Center. In fact, in comparison, conversations with ‘ordinary’ people can start to seem pretty dull! When you let grandma be herself, you never quite know what’s going to come next. And for all appearances, conversations become much more fulfilling for grandma. She gets to talk and move through her mind without anyone telling her she’s doing anything wrong.
This is the magic of being in the moment, and the magic of letting people be Themselves. If we spend all our time trying to change grandma’s behavior back to ‘normal’ we’ll miss out on an amazing portion of her life. Whether or not we like it, that’s where she is right now.
Would it be so terrible if we honored her present-moment grandma-ness by letting her be herself?
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November 25th, 2006 at 8:04 pm
Ken, this is just what I found with my mom and aunt. Enjoy them at this moment in time or, as you express it, enjoy “the magic of being in the moment.” Mother and I or Auntie and I could have delightful visits if I didn’t correct them or try to bring them back to my world. Even though both of these delightful ladies are gone, I look back upon time spent with them with fond memories, which outweigh the frustrations.
February 15th, 2008 at 7:16 am
It happened to my grandma a month back. Sodium imbalance. Mom broke down but I played with her that way. It was fun
February 15th, 2008 at 9:38 pm
Greetings APA,
I’m hoping your grandmother had fun with it as well. I’ve watched sufferers’ frustration turn to laughter and satisfaction when people engage with them in a language they can understand. Really, it’s no different than any of us — we need people to speak in ‘our language’, or we can become frustrated and disheartened. When others can perceive our emotions and ideas, we create a link of communication which has the potential to bring joy to everyone involved.
Sweetwater,
Kenton
May 9th, 2008 at 2:21 pm
When I was a small child (6 or 7 yrs. old) my Grandmother had a stroke and thought that she was a child again. She thought that my sister & I were her playmates & we were ! We all played with dolls, had tea parties. etc.. We all had so much fun together ! I noticed that all of the adults were always so sad around my Grandma. I guess that children can be more accepting to ‘what is’ than adults can.
Cherie
May 10th, 2008 at 2:34 am
Dear Cherie,
Thank you for sharing this beautiful story — this is exactly what I hope this post can encourage. =)
Hugs,
Kenton